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Sunday, 21 October 2012

Miracles In Gene Therapy Explored In "The Forever Fix"

By Saleem Rana


Monday, October 1st, 2012

Interview By Allen Cardoza

Allen Cardoza, the founder of the Answers for the Family Blog, welcomed author Ricki Lewis to this week's L.A. Talk Radio to discuss her latest book, "The Forever Fix." This is the first book of its kind to reveal the inside story of gene therapy. The narrative non-fiction book is a description of how gene therapy works and the science behind it.

Ricki Lewis

Ricki grew up in New York City, acquiring her PhD in genetics from Indiana University in 1980 by experimenting with mutant flies that had legs growing out of their heads. After creating several textbooks and hundreds of magazine articles, she is especially thrilled about her first narrative nonfiction book, "The Forever Fix: Gene Therapy and the Boy Who Saved It." This is the remarkable true story of a revived biotechnology that provided the gift of sight to a young boy. In an engaging, novel-like narration, Ricki chronicles the ups and downs of gene therapy through the eyes of the youngsters, mothers and fathers, researchers, and the sheepdogs that have actually experienced it.

Ricki is a genetics counselor in Schenectady, NY and an instructor of the Genethics online Masters program at the Alden March Bioethics Institute of Albany Medical College. In addition to this professional work, she is a volunteer for Community Hospice in Schenectady.

The Quiet Revolution in Gene Therapy

Allen began the interview by asking Ricki to share with the listeners the fascinating story of Corey Haas. Ricki explained that in 2008, Corey Haas, then 8-years-old, had successfully undergone gene therapy to cure his hereditary blindness. His restored vision marked a breakthrough in the recognition of the immense value of gene therapy. Nine years earlier, the biotechnology had been sidelined when an 18-year-old died in a similar experiment in the very same Philadelphia hospital.

In the course of the interview, Ricki discussed genetic disease, genetic testing, and genetic counseling, in addition to gene therapy, unusual diseases, and new discoveries in stem cell research. She also talked about how medical researchers learned from each trial to get one step closer to figuring out what worked in gene therapy. She decided to call her book the "Forever Fix," since gene therapy repairs all medical issues at their genetic origin. After a single treatment, patients, mainly youngsters with unusual genetic diseases, do not need further surgical procedures or treatments.




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